Chronic Fatigue & Fibromyalgia

[Sherrie]

Hey Moonie I'm adding links for this on my links page and I remember you had lots of info on fibro so if you (or anyone else for that matter) have some let me know and I'll add them too.

http://www.apinchofhealth.com/links/healthweight.html

[Moonie]

http://www.disability.vic.gov.au/dsonline/dsarticles.nsf/pages/Fibromyalgia

http://www.fmnetnews.com/pages/coping.html

http://www.womansday.com/article.asp?section_id=4&article_id=7497

http://www.arthritis.org/resources/news/news_fibromyalgia.asp

http://www.arthritis.org/conditions/diseasecenter/fibromyalgia/fibromyalgia.asp

http://www.geocities.com/cfsdays/follies.htm

[Sherrie]

Thanks :)

[Snez]

At the moment I am reading the coconut diet by Cherie Calbom. In it a 60 yr old woman who suffered from fibromyalgia for 10 yrs started having 4 tablespoons of coconut oil per day and now doesn't suffer fatigue and is pain free.

[Sherrie]

Snez I have that book!

[Moonie]

Must see if I can get hold of that book..it would be wonderful to be pain free..I wonder if it helps with the fatigue associated with FM as well..

[Snez]

Originally posted by moonstruck
Must see if I can get hold of that book..it would be wonderful to be pain free..I wonder if it helps with the fatigue associated with FM as well..

Moonie, yes it helps with the fatigue associated with FM. You must have about 3-4 tbsps per day. U.S. tbs which are 15mL x 4.

My library got it for me from the state library to borrow. I'm not sure if you can purchase it here - probably.

Have you read the book Sherrie. Did you purchase it?

[Sherrie]

That was the one I was reading last year, didn't get to finish it though but I still have it as I bought it. I have lots of books I'd love to read or finish reading :)

I'm a bit of a bookoholic especially if its something informational.

[Moonie]

http://www.wise1.com/fibro/nutrition.html

Glutamine and Urea
Plasma cystine levels regulate nitrogen balance and body cell mass. The importance of maintaining normal cystine levels is so critical that skeletal muscle protein is cannibalized in order to supply the increased cystine demand. In the short term this may be useful but in chronic conditions it is very damaging as it leads to an excess production of urea at the expense of glutamine which is needed for the fueling of the immune system.


this could explain my high reading of Urea in the blood tests...

[Sherrie]

Found this just now on science Daily:

Further Legitimization Of Fibromyalgia As A True Medical Condition (http://www.sciencedaily.com/releases/2007/06/070625095756.htm)

[Sherrie]

Treating CFS and FMS with T3 Supraphysiological cyclic dosing of sustained release T3 in order to reset low basal body temperature. (http://www.apinchofhealth.com/forum/vbb/showthread.php?p=165977#post165977)

[Silver]

Case study on leaky gut syndrome and CFS:

http://www.ediver.be/ediver/latest%20news/Maes%20M,%20leaky%20gut%20in%20CFS.pdf

I apologize if this paper has already been posted.

Some interesting comments, after the post, at Dr. Emily Deans' blog on this:

http://evolutionarypsychiatry.blogspot.com/2011/02/depression-and-leaky-gut.html#comments

[Sherrie]

You'll find the connection with leaky gut, depression and wheat (when say celiac is ruled out) is likely fructose malabsorption. One of the symptoms of fructose malabsorption is anxiety and deppresion. Wheat contains fructans which are a form of fructose. The inabiltity to absorb particular sugars properly such as fructose and lactose is usually the cause of most IBS. However fructose malabsorption can be kept in check simply by making sure your ratio of glucose to fructose is higher.

For whatever reason that PDF is not loading, my internet speed is very good so I suspect it is the link. I do not know how it was linking leaky gut with CFS but I would say if there was a link it would be a symptom of whatever is causing the CFS or a symptom of the CFS itself which may be caused by a virus that causes neuroligical damage which then results in CFS.

[Silver]

Sherrie, I've just tried the link again, and it works fine on my computer.

Here is a link to the main site, which has several papers by Michael Maes on CFS, if it is of interest:

http://www.ediver.be/ediver/

[Sherrie]

My main drive was unbootable yesterday so I had to boot up off an old drive so that could be why. I'm still installing plugins and software etc so I will try to have a look again later.

I always get skeptical when I see depression and psychiatry in amongst discussions on CFS. One of Garrry's work mates has CFS and she has been wrongly treated for it and just came out of hospital after her second hospitalisation, it's not good what they have done to her.

[Sherrie]

This is the study that I was in that is about to be published:



A brain MRI study of chronic fatigue syndrome: Evidence of brainstem dysfunction and altered homeostasis

Authors: Leighton R. Barnden, Benjamin Crouch, Richard Kwiatek, Richard Burnet, Anacleto Mernone, Steve Chryssidis, Garry Scroop, Peter Del Fante


Publication: NMR in Biomedicine


Abstract [accepted, pre-proof]


To explore brain involvement in chronic fatigue syndrome (CFS), we have extended statistical parametric mapping of brain magnetic resonance (MR) images to whole-brain voxel-based regressions against clinical scores.

Using SPM5 we performed voxel-based morphometry (VBM) and analysed T1- and T2-weighted spin-echo MR signal levels in 25 CFS subjects and 25 normal controls (NC). Clinical scores included CFS fatigue duration, a score based on the 10 most common CFS symptoms, the Bell score, HADS anxiety and depression, and hemodynamic parameters from 24 hour blood pressure monitoring. We also performed group × hemodynamic score interaction regressions to detect locations where MR regressions were opposite for CFS and NC, thereby indicating abnormality in the CFS group.

In the midbrain, white matter volume was observed to decrease with increasing fatigue duration. For T1-weighted MR and white matter volume, group × hemodynamic score interactions were detected in the brainstem (strongest in midbrain grey matter), deep prefrontal white matter, the caudal basal pons and hypothalamus.

A strong correlation in CFS between brainstem grey matter volume and pulse pressure suggested impaired cerebrovascular autoregulation. We argue that at least some of these changes could arise from astrocyte dysfunction.

These results are consistent with an insult to the midbrain at fatigue onset that affects multiple feedback control loops to suppress cerebral motor and cognitive activity and disrupt local CNS homeostasis, including resetting of some elements of the autonomic nervous system.


Copyright © 2011 John Wiley & Sons, Ltd.